Annalise Lujan, 12, was taking part in a gymnastics class when she began vomiting, lost all feeling in her legs and suffered a severe seizure.
The little girl was admitted at the hospital hospital where paramedics put her in a medically induced coma to stop any further damage being caused to her brain.
The youngster was flown to a specialist unit at Phoenix Children’s Hospital where she was diagnosed with febrile infection-related epilepsy syndrome (FIRES), an incredibly rare condition affecting just one in a million children.
According to KVOA, her mother, Maryann Estrada-Lujan said,
“One day, she was just a healthy young lady, going to school, participating in her community and her gymnastics, and the next day – fighting for her life.
“She was put on a ventilator, and put into a medical coma, and, we haven’t talked to her since.“We had no idea that our whole world would be 180-degrees turned around in such devastation, such heartache, such confusion.”
The condition was causing Annalise to suffer constant seizures which can prove to be fatal, but normal epilepsy medication was ineffective against FIRES.
Doctors were not able to bring her out of her induced coma until they found a method of controlling the seizures.
Her mother began researching alternative remedies and discovered a cannabis -derived drug, Cannabidiol, which had been successful in previous epilepsy cases.
She lobbied for the drug, which has low levels of THC which is the active ingredient making people ‘high’, to be given to her daughter.
Doctors had to rush through its approval with the FDA and DEA as the drug was not yet approved.
After just three treatments the schoolgirl, from Tuscon, Arizona, was able to be brought out of her coma, and no longer suffers from the crippling seizures.
0gial
No comments:
Post a Comment